Lived Experience

416 articles:
by Maddi Dellplain

Telegraph hit job a prime example of how not to report on drug policy

The Telegraph story depicts Vancouver's Downtown Eastside in a way that maximizes the harm done to their most vulnerable sources. But as journalists, we don't need to punch down to do our jobs.

by Kathleen Finlay

It’s time to make compassion more relevant in our world

A generative compassion approach looks at the bigger picture and proactively asks the question: What more needs to be done to prevent more harm from occurring?

by Zier Zhou

Team Canada’s Alicia Souveny: Car crash survivor and blood donation advocate

Alicia Souveny lost her left leg in a car accident in 2019 and would have lost her life, too, had she not received enough blood in time from donors. She's now an ambassador for the Canadian Blood Services and a member of the national women's para-hockey team.

by Nicole Smith

Ethical issues cloud online Ozempic prescription services

Patients with obesity are caught in the middle of two ethical issues rooted in weight bias – the reason the online services exist and the online services themselves.

by Emily Foucault

Along with millions of others, I live with MCAS. There is an urgent need for research and support

"Mast Cell Activation Syndrome (MCAS) is a debilitating and often misunderstood condition. As someone living with MCAS, I have firsthand experience of its profound impact on daily life and the urgent need for greater awareness, research and funding."

by Maxime Lê

Childbirth PTSD is all too common. AI may help remove stigma and improve care

Listening to patient voices is crucial, but physicians can sometimes overlook details that could lead to an important diagnosis. AI can help.

by Hilary Brown Laurie Proulx Lesley A. Tarasoff Yona Lunsky

People with disabilities account for 13% of all pregnancies, but their needs are invisible

People with disabilities need inclusive, accessible pregnancy care that treats them with respect, dignity and acceptance.

by Allison Dunning

‘Thank you for sharing. Do you have a plan?’ Outdated policies preventing peer supporters from saving lives

Peer supporters are ready and able to support people with experiences relating to death and dying – we just need organizational policies to get with the times.

by Maddi Dellplain

The toxic standards that have shaped coverage of drug use in Canada

While a health crisis has unfolded, newsrooms have had to learn to do better. But the changes in framing haven’t always come fast enough or extended to the workers with lived experience

by Karine Diedrich

If not you, who will make your medical decisions?

Imagine finding yourself in a medical emergency, unconscious and unable to communicate. Who then becomes your voice in this complex web of health-care decisions?

by Maxime Lê

Patient partners add value to health research

Involving patients and caregivers in research can make research more relevant. So, how can patients and caregivers partner on a project?

by Victoria Cook Aleah Gustafson Samira Jeimy

Food oral immunotherapy through a parent’s lens: A paradigm shift in food allergy management

A case study highlights the importance of the patient’s perspective in navigating food allergies and of advocating for yourself in the face of scarce resources.

by W.A. Bogart

‘Unshrinking’ tackles fat shaming and bigotry

Kate Manne's new book examines fatphobia in North American society and its sweeping impacts on health care, history and politics.

by Darren Cargill

Match Day 2024: ‘Take 3 deep breaths … and have faith’

The NFL draft is much like the CaRMS match. It distills years of hard work and sacrifice into one binary answer: matched/unmatched.

by Joe Vipond Chris Houston Kashif Pirzada Nancy Delagrave Cheryl White

Introducing the Canadian Covid Society – because we need it

It’s time for Canadians to organize and advocate for patients, for ourselves and for our kids. It’s time for better COVID-19 policies from our health authorities and politicians.

by Sarah Bartnicka

‘Why would I not keep going?’ Month-long sobriety challenges establish healthy habits

Dry January and Sober October could be the start to forming long-term, healthier relationships with alcohol.

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